Challenge and hope: How people experience and manage living with acromegaly

(BPT) - Living with a rare disease can be an isolating experience that is difficult to navigate. Between delays in receiving the correct diagnosis to learning how to change daily habits for symptom relief, people who live with rare diseases must overcome many obstacles. Those living with acromegaly know this experience all too well.

According to the Endocrine Society, acromegaly is a rare condition usually caused by excess growth hormone in the body.[1] Symptoms can happen slowly, making the disease difficult to diagnose. Treatment options can include surgery, radiation therapy and systemic medications. However, the right treatment option is not always the first option. It takes time for many people living with acromegaly to work with their doctors to find the path to relief that works best for their symptoms, especially as more recently, personalized treatment has been recognized as quite important

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